Duchenne Muscular Dystrophy (DMD) Awarness Day

The United Nations in Kuwait observed World Duchenne Awareness Day on September 7, 2024, raising awareness about Duchenne Muscular Dystrophy (DMD) and advocating for greater global and local efforts to address this devastating condition.

Duchenne Muscular Dystrophy is one of the most severe forms of muscular dystrophy, primarily affecting boys. It is caused by mutations in the DMD gene, which plays a critical role in producing dystrophin, a protein essential for muscle function. The absence of dystrophin leads to progressive muscle weakness, loss of motor function, respiratory difficulties, and ultimately heart complications.

Globally, DMD affects approximately 1 in every 3,500 to 5,000 live male births. In Kuwait, the prevalence of genetic disorders, including DMD, is a significant concern. A study conducted in Kuwait identified 68 families affected by the DMD mutation, underscoring the pressing need for early detection, effective healthcare interventions, and ongoing research to support those living with the condition.

Kuwait's pivotal role in establishing World Duchenne Awareness Day is a testament to its leadership and commitment to raising global awareness about DMD. Through this annual observance, Kuwait aims to foster a deeper understanding of the disorder, promote early diagnosis, and encourage advancements in treatment and care. Our dedication extends beyond national borders, as we join the global community in striving to improve the lives of individuals living with DMD and other rare genetic diseases that, although less common, have profound impacts on quality of life and impose significant healthcare costs.

Dr. Assad Hafeez, WHO Representative to the State of Kuwait, emphasized the importance of this awareness campaign, saying: "World Duchenne Awareness Day is a critical opportunity to amplify the voices of those affected by DMD. The WHO is committed to working with Kuwait and other member states to improve healthcare access, early diagnosis, and treatment advancements, ensuring that all affected individuals receive the support they need."

The theme for this year’s World Duchenne Awareness Day, “Raise Your Voice for Duchenne,” emphasizes the importance of amplifying the voices of those affected by DMD and other dystrophinopathies. It calls for action to advocate for their rights, inclusion, and overall well-being, ensuring they receive the support and care they deserve.

The WHO continues to work collaboratively with Member States to enhance awareness, provide best practice guidelines, and integrate the needs of the most vulnerable into health and non-health policies alike. Through collective action and sustained commitment, we can make a meaningful difference in the lives of those affected by DMD.

-ENDS-

About WHO

Dedicated to the well-being of all people and guided by science, the World Health Organization leads and champions global efforts to give everyone, everywhere and equal chance at a safe and healthy life. We are the United Nations agency for health that connects nations, partners and people on the front lines in 150+ locations, leading the world’s response to health emergencies, preventing disease, addressing the root causes of health issues, and expanding access to medicines and health care. Our mission is to promote health, keep the world safe and serve the vulnerable.